Educational Podcasts
Updated: November 17, 2011
When we have guest speakers at our Drop-in Support Group Meetings we often record the meeting so that others can listen.
The meetings are about one hour long.
Our French language website and newsletters were launched in August 2009. We have not yet had a French language Drop-in Meeting, but the first one is in the works. As a result, all of our podcasts are currently in English.
November 15, 2011: Beth Haliburton, BSc, BASc, RD, General Healthy Eating and Nutrition in Alpha 1 Antitrypsin Deficiency
December 2, 2010: Durhane Wong-Rieger, PhD, The development and implementation of a Canada-wide regulatory framework for rare disorders – Promises kept?
About Durhane Wong-Rieger
Durhane Wong-Rieger is president of the Canadian Organization for Rare Disorders and president and CEO of the Institute for Optimizing Health Outcomes. She is also head of Consumer Advocare Network, a national network to promote patient engagement in healthcare policy and advocacy. Internationally, she serves as Chair of the Board of the International Alliance of Patient Organizations. She is a licensed T-Trainer with the Stanford-based Living A Healthy Life with Chronic Conditions.
As president of the Canadian Hemophilia Society, Durhane advocated on behalf of victims of tainted blood and was named to the Board of Directors of the Canadian Blood Services and the National Blood Safety Council. Dr. Wong-Rieger has served on numerous health policy advisory committees and panels, including Project Coordinator for the Policy Dialogues for the Commission on the Future of Healthcare in Canada and consultant to the Ontario Premier's Advisory Body on Organ Donation.
From 1984 to 1999, Durhane was professor of psychology at the University of Windsor in Ontario. Durhane has a BA in psychology from Barnard College in New York City and an MA and PhD in social psychology from McGill University in Montreal. She is author of two books and many articles and a frequent lecturer and workshop leader.
June 24, 2010: Anita Shallal, B.Sc,, R.N.: Nutrition and Alpha-1, foods to eat, foods to avoid in order to breathe easier and take care of your liver.
About Anita Shallal
Anita is a co-op student doing research for Alpha-1 Canada. Anita is a registered nurse and student at the University of Windsor. In addition to being a student and working as a nurse, Anita is preparing to write the entrance exams for medical school. The research she is working on is about nutrition, specifically as it pertains to Alpha-1 lung and liver disease.
March 25, 2010: Dr. Kenneth Chapman answered the question, "How do I get the best treatment for my (lung involved) Alpha-1?" Total length is about 1 hour.
About Dr. Chapman
Dr. Chapman is a Professor of Medicine at the University of Toronto and an internationally respected researcher in the field of asthma and airway diseases including Alpha-1.
Dr. Chapman is also Director of the Canadian Registry for Alpha-1 Antitrypsin Deficiency and the chair of the Alpha-1 Canada Medical Advisory Board.
Dr. Chapman's complete bio can be viewed here.
January 21, 2010: Stephen Brennan, M.S.W., R.S.W. spoke about the psychosocial aspects of being diagnosed with a life threatening illness. Total length is about 1 hour.
About Stephan Brennan
Stephen has maintained a full time private practice in social work for the past 29 years. His practice includes family, marital, and individual counseling, working with adults and children of all ages.
For 27 years, part of his practice has also been to provide social work services to The Hospice of Windsor and Essex County. In that role, he has worked with patients and family members around all areas of adjustment relating to being diagnosed with a life threatening illness, both chronic and terminal. One of the key elements that Stephen speaks about is the importance of the person with the diagnosis to be continually empowered in their patient role as they move along the illness pathway.
April 29, 2009: Dr. Marier spoke about naturopathy as it relates to lung disease and answered questions. Total length is about 50 minutes. Due to technical problems the first ten minutes of his talk are missing.
About Dr. Marier
Dr. Marier is a graduate of the Canadian College of Naturopathic Medicine and is a registered Doctor of Naturopathic Medicine with a practice focus in mind-body medicine, stress reduction, and naturopathic oncology. He has completed training in Mind/Body Medicine and Positive Psychology at Harvard University Medical School’s Institute of Mind/Body Medicine.
Dr. Marier has also participated in naturopathic medical relief work following the Gujarat, India earthquake in January, 2001, and participated in the Nomad’s Clinic in rural Tibet in October 2004. He also volunteered in Sri Lanka following the devastating tsunami of December 26, 2004 and has volunteered in South Africa working with women and children affected by HIV/AIDS in 2006. He has also volunteered in Calcutta at Mother Teresa’s Home for the Dying Destitute and has an interest in naturopathic palliative care.
Recently, Dr. Marier completed a master’s degree in Ecopsychology through Naropa University, bringing nature-based therapies and ecological considerations into his practice. Dr. Marier is committed to educating and empowering individuals on their wellness journey with the tools to reduce stress and enhance the body’s natural healing ability through individualized treatment. His compassion, humour and dedication inspire all those he works with.
May 21, 2009: Dr. Ling spoke about paediatric Alpha-1 (liver disease) and answered questions. Total length is about 1 hour.
About Dr. Ling
Dr. Ling has been Assistant Professor of Paediatrics at the Hospital for Sick Children, University of Toronto since 2003. He works in close cooperation with the liver transplant team at Sick Kids and is a member of the Alpha-1 Canada Medical Advisory Board.
Dr. Ling is a Consultant in Paediatric Gastroenterology at the Royal Hospital for Sick Children, Glasgow, Scotland.
Additionally, Dr. Ling collaborates in studies of the genetic determinants of liver disease due to cystic fibrosis and alpha-1 antitrypsin deficiency.
Dr. Ling's complete bio can be viewed here.